Tonight as I was sitting here contemplating doing my Statistical Reasoning homework I got sidetracked by my email on Facebook. I know that doesnt sound like much of a big deal but it happened. It got me thinking.
It reminded me that this coming Saturday, Feb 26th 2011 we are doing the Muscular Dystrophy walk in Casey's memory. Ive had it in the back of my mind all week and done a few short posts on face book to friends of mine in a group of wonderful ladies Ive known for about 4 years now.
Here is the information about the MDA Walk for those who might be interested in doing the walk or contributing to Team Casey. http://walk.mda.org/mda-muscle-walk-cedar-rapids .
You can also use pay pal Please if you chose to donate leave me a message so I can send you a receipt for your donation which is 100% tax deductible. It doesn't have to be an elaborate amount. Even a dollar helps raise awareness and will go towards research.
I miss my daughter every single day - My hopes is that this money will possibly help someone else from going through the heartbreak I (and our family) have gone through since she passed away 11 months ago.
All funds collected will be going to research for Casey's type of Muscular Dystrophy.
Which brings up I have never explained or said exactly what type she had other than being born with it.
Casey had what they considered "Congenital Muscular Dystrophy" meaning she was born with it but they didnt and never could pinpoint exactly what type she had.
She went from Mild to Severe over time and eventually ended up with the diagnosis of :
Severe Congenital Myopathy Muscular Dystrophy.
Ill break down parts of it into simpler terms .
Congenital - Born with
Myopathy - Generalized Muscle Weakness
Muscular Dystrophy - Stealing dreams, stifling dreams all over the world and breaking hearts.
One person at a time. One child at a time. One family at a time.
Thank you.
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